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Friends and family have organized “Light the Way” a fundraiser for Team Elliott and Rhizo Kids who serve the greater community for Rhizomelic Chondrodisplaysia Punctata (RCDP).
Elliott Grace Castro was born on May 30 with the very rare terminal disease, RCDP, which is a form of dwarfism and presents with what is called skeletal dysplasia – most children don’t ever leave the hospital alive.
Event organizer and Elliott’s grandmother Brandy Blanton said, “The good news is that Elliott has already thwarted many of the normal hurdles for an RCDP baby including heart surgery, being on oxygen and a feeding tube. She is a joy in our world and this community has embraced her with open arms. This event will benefit not only Team Elliott, the name we have chosen for her cause, but the Rhizo Kids non-profit which supports research for the disease. They are actually close to unveiling a clinical trial that replaces the gene that is missing in RCDP children.”
Guests will be treated to live entertainment by local entertainers including Williamson County Bluegrass and The Case Study. A special guest or two will step on stage on the back porch of the Eastern Flank Event Facility for a few songs as well.
Families and children will enjoy the kids’ area complete with Touch-A-Truck from the Franklin Fire Department, face painting and a Musical Petting Zoo provided by Shuff’s Music. Team Elliott merchandise will also be available.
The fall event will feature deconstructed food trucks including Cool Café, Catering & Events by Suzette, Pueblo Real, Tin West Catering and more.
Guests are encouraged to bring lawn chairs and blankets. However, pets and coolers are not allowed.
The event opens at 4:30 p.m. Sunday, October 11 and is free and open to the public with a donation suggestion of $20 per person or $50 per family at the gate. Cash and checks are accepted.
For more information, email Brandy Blanton at brandy@southernexposuremagazine.com or call 615.300.5251.
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We hope you can make it!
Cheers,
Brandy Blanton |
